Socialization of Lupus Disease Awareness for Housewife Group of Genting Village, Ambarawa, Central Java

  • Stalis Norma Ethica Universitas Muhammadiyah Semarang
  • Ayu Rahmawati Sulistyaningtyas Universitas Muhammadiyah Semarang
  • Aditya Rahman Ernanto Universitas Muhammadiyah Semarang
  • Muhammad Ardi Afriansyah Universitas Muhammadiyah Semarang
  • Ana Hidayati Mukaromah Universitas Muhammadiyah Semarang
Keywords: Autoimmune Disease, Genting Village, Housewife, Lupus Awareness, Science and Technology for Society

Abstract

Lupus or Systemic Lupus Erythematosus (SLE) is a life-threatening chronic autoimmune disease with symptoms similar to those of other diseases. Frequent misdiagnosis of lupus increases the mortality rate of the disease. Public understanding is still low about Lupus, characterized by a variety of misperceptions about the disease, which still occurs. In rural area, Lupus is still often regarded as a virus transmitted and is associated with weak immune activity. There are still many women who do not yet know that they are a group that is more susceptible to Lupus than men. Various errors in people's perception of Lupus need to be corrected to increase public awareness of the disease. Efforts to correct misperceptions about Lupus have been done through Science and Technology for Community (Ilmu Pengetahuan dan Teknologi bagi Masyarakat, IbM) activities in counseling form to the housewife groups in Kalipucung Hamlet, Genting Village, Jambu District, Ambarawa, Central Java. Participatory approaches and tutorials have been carried out in the IbM activities through the provision of counseling materials, as well as the delivery of questionnaires before and after counseling. The results of the questionnaire analysis indicate that the counseling program could improve awareness about Lupus disease among community in rural area.

References

Alharbi, M. D., Aljohani, B. O., Alaithan, Z. N., Alsamadani, S. K., Alnefaie, S. A., Alshabibi, A. I., … & Almuawi, M. M. (2018). Public awareness of systemic lupus erythematosus in Al-Dammam City in Saudi Arabia. The Egyptian Journal of Hospital Medicine, 70(11), 1891-1894.

Etchegaray-Morales, I., Méndez-Martínez, S., Jiménez-Hernández, C., Mendoza-Pinto, C., Alonso-García, N. E., Montiel-Jarquín, A., ... & García-Carrasco, M. (2017). Factors associated with health-related quality of life in Mexican lupus patients using the LupusQol. PloS one, 12(1), e0170209.

Farkhati, M. Y., & Sunartini Hapsara, S. C. (2011). Survival and prognostic factors of systemic lupus erythematosus. In Proceedings of Congress of Indonesian Pediatrics Society (pp. 236-42).

Giffords, E. D., & Calderon, O. (2015). Academic and community collaborations: An exploration of benefits, barriers and successes. Human Service Organizations: Management, Leadership & Governance, 39(4), 397-405. https://www.tandfonline.com/doi/abs/10.1080/23303131.2015.1034907

Gladman, D. D. (2017). Overview of the clinical manifestations of systemic lupus erythematosus in adults. Retrieved September 22, 2019 from https://tinyurl.com/y5ku4tvy

Kinsey, D., Paul, C. P., Taylor, D., Caricchio, R., Kulathinal, R. J., & Hayes-Conroy, A. (2018). The whole lupus: Articulating biosocial interplay in systemic lupus erythematosus epidemiology and population disparities. Health & Place, 51, 182-188.

Kristanto, A. W., & Hary, T. P. (2017). Motivasi hidup pada penderita lupus dewasa. Jurnal Spirits, 5(2), 1-6.

Lewandowski, L. B., Watt, M. H., Schanberg, L. E., Thielman, N. M., & Scott, C. (2017). Missed opportunities for timely diagnosis of pediatric lupus in South Africa: a qualitative study. Pediatric Rheumatology, 15(1), 1-9.

Luo, X., & Husen, Z. (2017). 354 A comparative analysis of gut microbiota between systemic lupus erythematosus patients and non-autoimmune controls: a single centrecenter cohort experience.

Maselli, A., Conti, F., Alessandri, C., Colasanti, T., Barbati, C., Vomero, M., ... & Valesini, G. (2016). Low expression of estrogen receptor β in T lymphocytes and high serum levels of anti-estrogen receptor α antibodies impact disease activity in female patients with systemic lupus erythematosus. Biology of Sex Differences, 7(1), 1-10.

Rasmussen, N. S., Draborg, A. H., Nielsen, C. T., Jacobsen, S., & Houen, G. (2015). Antibodies to early EBV, CMV, and HHV6 antigens in systemic lupus erythematosus patients. Scandinavian Journal of Rheumatology, 44(2), 143-149.

Reed, J. C. (2017). The Annual report of the Georgia council on lupus education and awareness for fiscal year ending June 30, 2017 (Doctoral dissertation). Department of Community Health Dr. S. Sam Lim, Emory University.

Rohmatillah, W. S. (2018). Hubungan antara penerimaan diri dan dukungan sosial dengan health belief pada penderita penyakit lupus (ODAPUS) (Doctoral dissertation). UIN Sunan Gunung Djati Bandung. http://digilib.uinsgd.ac.id/11125/

Shirai, H., Shoda, H., Kobayashi, S., Fujio, K., Setoguchi, K., & Yamamoto, K. (2017). Two cases of very elderly onset male lupus patient; the characteristics and sex differences of elderly onset systemic lupus erythematosus patients. Modern Rheumatology Case Reports, 1(2), 84-88.

Sullivan, S. (2016). Development of a systemic lupus erythematosus knowledge questionnaire: the relationship among disease proximity, educational exposure and knowledge. Milwaukee, WI: UWM Digital Commons University of Wisconsin Milwaukee.

Tunnicliffe, D. J., Singh‐Grewal, D., Craig, J. C., Jesudason, S., Tugwell, P., Lin, M. W., ... & Tong, A. (2018). Perspectives of Medical Specialists from Different Disciplines on the Management of Systemic Lupus Erythematosus: An Interview Study. Arthritis Care & Research, 70(9), 1284-1293.

Utset, T. O., Baskaran, A., Segal, B. M., Trupin, L., Ogale, S., Herberich, E., & Kalunian, K. (2015). Work disability, lost productivity and associated risk factors in patients diagnosed with systemic lupus erythematosus. Lupus Science & Medicine, 2(1), 1-9.

Wallace, D. J. S. V., Furie, V., Petri, R., Kalunian, M., Pike, K., & M Kelley, L. (2011). Evaluation of Treatment Success in Systemic Lupus Erythematosus Clinical Trials: Development of the British Isles Lupus Assessment Group-based Composite Lupus Assessment Endpoint. Arthritis & Rheumatism, 63, S894.

Yan, D., Jing, H., Guo, J. P., Dai, Y. J., Chun, L., Min, F., ... & Li, Z. G. (2012). Gender differences are associated with the clinical features of systemic lupus erythematosus. Chinese Medical Journal, 125(14), 2477-2481.

Published
2020-11-30
How to Cite
Ethica, S., Sulistyaningtyas, A., Ernanto, A., Afriansyah, M., & Mukaromah, A. (2020). Socialization of Lupus Disease Awareness for Housewife Group of Genting Village, Ambarawa, Central Java. Jurnal Pengabdian Pada Masyarakat, 5(4), 906-916. https://doi.org/10.30653/002.202054.444
Section
Articles